People living with dementia to take a lead role in improving dementia care

From the Humber Coast and Vale STP newsletter

The Humber, Coast and Vale STP is embarking on a programme of joint work with two independent and impartial UK wide involvement networks to include people with dementia and their loved ones in planning services for the future.

DEEP (Dementia Engagement and Empowerment Project) and tide (together in dementia everyday) will be supporting the STP to develop ways of ensuring that the dementia work programme is co-produced with people living with dementia and family carers.

They believe that fully involving people living with dementia and their carers as equal partners alongside clinicians and local health and social care organisations, will enable them to make the care system more responsive to peoples’ needs.

Initial work includes:

  • a carer development programme, which equips former and current carers of people living with dementia with the knowledge, skills and confidence to use their caring expertise to influence policy, research and practice including service transformation and redesign. By investing in tide they are committed to ensuring that carers of people living with dementia are recognised for their expertise and are treated as equal partners in the design of the future health and social care system.
  • creating supportive environments for people living with dementia to discuss their experiences and to provide innovative challenge to the Partnership about how things could work differently to support those people affected to live well with dementia.

If you are interested in finding out more about the STP’s work to transform dementia care get in touch.






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